Written 12/23/09 (+25 months)
Merry Christmas from Jonah (25-months post-BMT)!
Jonah is now two-years and 4-months-old, and exactly 25-months post-BMT for HLH today. We have been waiting for the results of his latest blood tests from this month before posting this update....... Click Here for More
Written 06/23/09 (+18 months)
SUMMER FUN !!!
We praise Our Lord for His countless blessings on Jonah and our family!
Can you believe that Jonah is past the 1.5-year mark since his live-saving BMT when he was just 3.5-months-old?!...... Click Here for More
Written 02/13/09 (+14.5 months)
Happy Valentine's Day!
Time has flown since our last update! Its now just over 14.5 months after Jonah's BMT. He did get the catheter removed from his chest just before Christmas..... Click Here for More
Written 11/27/08 (Day +370)
HAPPY THANKSGIVING!
Jonah is now a little more than one year out from his life-saving BMT which he underwent on the day after Thanksgiving last year (11/23/2007)!.... Click Here for More
Written 09/13/08 (Day +282)
We are sorry for the long interval since our last update! Today is Day +282. We think its time to start counting in months instead of days, and it's over 9.5 months post-BMT for Jonah.... Click Here for More
Written 07/22/08 (Day +241)
Today is day +241, and we want to share some very good news with you all! We are so thankful to Our Lord for His wonderful Blessings, and also your support, especially over the past two weeks! Our collective prayers are being answered!..... Click Here for More
Written 07/03/08 (Day +222)
Today is Day+222, and Jonah turned 11-months old yesterday. We have very disheartening, shocking, unexpected news about Jonah's latest engraftment tests from this week..... Click Here for More
Written 06/21/08 (Day +211)
Today is Day +211 for Jonah, and he will be 7-months out from his BMT on Monday. We wish we could be completely upbeat about Jonah's progress but have received some discouraging news since his last update..... Click Here for More
Written 05/24/08 (Day +183)
Today is Day +183 for Jonah. Yesterday was Jonah's 6-month anniversary for his BMT! If it weren't for following Jonah's maddening blood test results every week and the venous catheter in his chest, we could almost fool ourselves into believing he is a normal 9.5-month-old boy! ..... Click Here for More
Written 04/21/08 (Day +150)
It has been wonderful to be at home for the 2nd month now and Jonah is day +150 out from his bone marrow transplant in late November. One would think that he would be fully recovered by now, but the immune system takes time to rebuild and he will not be completely healed for quite some time to come..... Click Here for More
Written 03/26/08 (Day +124)
Happy Belated Easter! We praise and thank Our Lord Jesus Christ for his enduring Passion, and the Truth of His Resurrection!
Today is Day +124 for Jonah. As you all know well, nothing is ever smooth sailing for a BMT patient and his or her family..... Click Here for More
Written 3/02/2008 (Day +100)
Today is an important milestone for Jonah for two reasons: its day +100 since his BMT, and he is also 7-months-old! A lot has happened since we posted our last desperate update..... Click Here for More
Written 2/12/2008 (Day +81)
Today is day +81 after BMT for Jonah, and we desperately need your prayers for him! ..... Click Here for More
Written 2/05/2008 (Day +74)
Jonah turned 6-months this past weekend, and today is day +74. This very long BMT process is never boring, and true-to-form, we have had some hurdles to overcome during the past several weeks..... Click Here for More
Written 1/12/2008 (Day +50)
Jonah turned 5-months-old last week, and is now day +50 after BMT. We have had a very busy and stressful past week but thankfully Jonah appears to be doing well..... Click Here for More
Written 12/23/2007 (Day +30)
It is day +30 for Jonah's BMT. We have had some setbacks over the past 2 weeks but Jonah seems to be doing very well otherwise. Jonah has been discharged from the hospital!..... Click Here for More
Written 12/07/2007 (Day +14)
We are so sorry for not posting an update earlier- we have been too exhausted by the events of the past two weeks, beginning with Ethan's complication during the bone marrow harvest for Jonah..... Click Here for More
Written 11/24/2007 (Day +1)
Please keep Nat, Jeannie, Ethan and Jonah in your thoughts and prayers this week. What was supposed to be a day of promise has turned into a living nightmare..... Click Here for More
Written 11/16/2007 (Day -7)
So much has happened since Jonah was admitted to the BMT unit at Cincinnati Children's Hospital just over two weeks ago. We have been doing 12-hour shifts around the clock keeping him company, and are exhausted already. Not all has gone quite as expected or desired during Jonah's pre-transplant workup, and Ethan's evaluation..... Click Here for More
Written 11/01/2007
It has been an incredible whirlwind of activity for our family this week since we were evacuated from our home in San Diego last week because of the wildfires. Jonah did receive his chemotherapy on time last week at Children's Hospital Los Angeles- we are so thankful for their very kind help..... Click Here for More
Written 10/22/2007
We do not even know how to begin this update. Its mind-numbing what is happening to us..... Click Here for More
Written 10/16/2007
Jonah is now 10-weeks-old and in the middle of his 7th week of chemotherapy. His labs last week thankfully show a continuing response of his HLH disease. His diaper area remains inflamed but appears to be still healing with one small deep ulcer remaining..... Click Here for More
Written 9/28/2007
....Jonah just turned 8-weeks-old, and is beginning his fifth week of chemotherapy. Although he is intermittently quite uncomfortable, he is becoming more and more interactive, and even smiles occasionally..... Click Here for More
Written 9/21/2007
Baby Jonah has finished 3 of 8 weeks of chemotherapy and was able to come home on Tuesday (9-18). His HLH has responded to the chemotherapy, but he is experiencing side effect..... Click Here for More
Written 9/20/2007
Jonah has been released from the hospital and has been home for the last few days. What a difference from the last time he was home. It is sobering to think that he has now spent half of his life at home and half at the hospital..... Click Here for More
Written 9/9/2007
Jonah has been on chemotherapy since August 30. His liver function and his clotting ability has improved and several markers of HLH are better..... Click Here for More