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www.SaveJonah.com |
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Thoughts & Encouragements |
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Jonah, Happy 2nd Birthday to you!!!
Love, Kimmie (August 2, 2009)

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| Dearest Nat, Jeannie, Ethan and Jonah,
We LOVED seeing the pictures of Jonah and we are so pleased that the news from this last series of tests have been positive.
What a brave boy your are, Jonah... and so handsome (I love your chubby cheeks!). We know your brother, Ethan, from pre-school. He's one of Isabella's friends. He's very cool and we think he's pretty great. Did you see all his handsome pictures in this years yearbook? I'm sure he is a great big brother... but we hope you are keeping him on his toes as all little brothers should.
We also hope to meet you in the near future!
Nat and Jeannie... what can we say? Both boys are so blessed to have you both. Your courage, love and passion for these two gorgeous children are awesome and inspiring. As parents, our hearts are with you... as friends, our prayers will be continuous. Here's to continued strength and improved immune systems... and a beach play date with all the kids very soon!
Happy summer 2009 (and upcoming birthday number 2!!!). Thank you for sharing your journey with us.
Lovingly,
Antoinette, Giles, and Isabella xx, July 2, 2009
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Our daughter was diagnosed with HLH when she was 2 years old. She is almost 5 now. Her name is Corrine Butz. Our website is www.smokinbutz.com
God bless you. November 24, 2008 |
Hi,
Thanks for all the updates on little Jonah; I'm enjoying reading and viewing all the photos of both Jonah and Ethan. I had to do a double-take on the main picture to see if that was Jonah or Ethan! He looks just like his brother when he was that age, except Jonah has more hair =). Hope he had a wonderful first birthday. Happy holidays!!
Take Care, Sivly Ly
Former "A Brighter Future" pre-k teacher, November 15, 2008 |
We hadn't seen an update for quite a while and just wanted to let you know we are still praying for your sweet boy and family. Can you believe it has been a year? How is he doing? Hope you are all well.
Hugs and Prayers, The Belau Family, November 9, 2008 |
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Thank You For Reminding Me How Precious Life is....
I Will Pray For Jonah and Your Family
I Also Have Sent Out Many Emails Asking For Prayers For Jonah And Your Family....
Nicole Campbell, October 7, 2008
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Jonah,
Happy birthday!
We all hope to see you soon!
Love,
Shana, August 2nd 2008 |
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敬賢,
祝你生日快樂, 快高長大!!!
太祖母 8/2/2008
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My Dearest Jonah,
Wishing you a very very Happy First Birthday today!! When we used to ask Ethan how old were you, your older brother replied “he doesn't have a number yet”, what a smart and funny guy Ethan is!!! Now we are all saying so loud “Jonah is ONE!!!”
Love and Kisses, your (great-)Auntie Kim, August 2nd, 2008
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Jonah!
Happy birthday! We all miss you and Ethan here in LA!
Love,
Your Auntie Stefanie, San Marino CA, August 2nd, 2008
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Dearest Jonah,
Live from New York: it's already your birthday in this part of the country.
Your first birthday, so exciting and always so much fun. I can't remember my birthdays when I was your age, but I can say that every one is always memorable (and sometimes dreaded).
Enjoy your day and know that I'll be thinking about you from the other side of the continent.
Uncle Michael, New York NY, August 2, 2008
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You guys don't know me at all, but my 16 yr old son died three weeks ago with Primary HLH. I was researching HLH and came across your website. I am amazed at how strong all of you seem to be. Especially little Ethan. I know exactly what your going through.....my son caught a stomach virus, which we thought would be gone in a day or so. Three days later he was so pale and I thought he was dehydrated, so we took him to the emergency room. His liver and spleen were very swollen and at that time they thought it was liver failure. The next day we discovered the HLH and he was put on a ventalator......I won't bore you with the rest of the details, but he fought a good fight and was gone 5 days later, but he didn't suffer long. Now he is with Jesus! My heart is broken and I am praying for little Jonah, that he will survive this. We had never heard of HLH and now it is my goal in life to make sure that all the people that I know.....know about it and maybe they will tell someone. Another thing I am trying to do is get Dr's aware of it too! I can't tell you how many Dr's, Nurses we have come across that haven't even heard of it. The government doesn't even fund any research because it is so rare....that is so uncomprehensive to me. A disease like this and it's not important enough? I don't want to get on my soap box....but I do want you to know that I just said a prayer for you all and will continue to do so each and every day. I wish you well!
Stay strong and keep us updated.
Liz Drouault
Good Hope, GA, July 16, 2008
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Thank you so very much for visiting Luke's site to say 'hello'!!! We hope you know that we have been praying for your family, especially Jonah, for a long time now. This is such a long, difficult journey, and I am not sure that the stress and worry will ever completely disappear, but I do know that having others who are living a life very similar to yours, is a Godsend. This engraftment roller coaster is exhausting and, seemingly, never ending. I remember it being one of the most stressful parts of the transplant process as my fear of GVHD was just as great as my fear of losing engraftment. Luke received 4 DLI's and his engraftment is now 100% and has been for well over a year now. He never had any signs of GVHD and, all things considered, is doing quite well. From what I can tell, the key to this whole DLI thing is to start the DLI's as soon as a trend in decreasing engraftment is noted. Luke's engraftment never dropped lower than 60% (they started DLI's when it got to 75%, I think) and the schedule seemed to work great. It went up slowly but steadily and we haven't looked back since. I think it is great that you are starting the DLI's now because Jonah hasn't lost too much engraftment and he has a matched sibling donor (by the way, Ethan is an amazing little boy and big brother, you should be very proud). My hope and prayer, as is yours, I'm sure, is that Jonah's engraftment will stabilize and then, slowly, begin to increase after only one or two DLI's so that you don't have to put Ethan through another donation. I can't imagine how hard this must be having both of your little boys involved, what a blessing that Jonah had a perfect match in Ethan, but how hard for you to have to put one son at risk in order to save the other. Please know that we will keep you in our thoughts and prayers and if you ever need anything, please call or e-mail anytime.
Fondly,
Erika,Pat and Luke Celentano (HLH/BMT buddy) July 16, 2008
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You are in our thoughts and prayers! We are here for you!!!!
Lee Ann Blankenship, July 4, 2008
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Our Dearest Jonah,
We know you are much stronger and energetic than we understand. You have determined to win this HLH/BMT battle, and we are all here to support you and love you. Happy first 4th to you and many more to come!!!
Hugs and Kisses, your friends and family in LA. July 4, 2008
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My dear Jonah, you have more friends than you could imagine and we all are and will continue praying for you and your health with lots of faith. From KB, July 4th 2008
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While I hate to hear of the gradual decrease, I have hope that it will find a happy chemerism that both donor and host can live with. I am praying for your Jonah! He sounds like he is doing great and he has a terrific big brother that loves him. I am with you on womdering when this rollercoaster will end, but at least they are doing well along the ride. Praising God for that! I understand your worries and I wanted to tell you as hard as it is, what helps me is to know I am not alone. And remember with their disease they do not have to be 100%, stable is the key and nk function.
From Ethan Blankenship's mom, June 23, 2008
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Ethan Blankenship also has HLH and BMT, please pray for Ethan and his family. Best Wishes from Team Save Jonah. http://www.caringbridge.org/visit/ethanlee
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BMT patients and their families go through so much. A constant battle against the disease raging against a little one who is so fragile. My love to you all, and my prayers for Jonah's full engraftment.
Ron McGurk, Laval, Quebec, Canada, June 8, 2008
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Dr. Chuang,
You are so blessed. I don't think you realize how much we are all here for you. And who am I? I'm just an x-ray tech at the hospital--BUT--I am also severly in "your court" because I feel strongly this urge to nurture another human as you have brought one into this world. What better testament to His love for us than to fly in the face of complete adversity? Nothing could prove our faith in HIm than paying this price. I only write you because I have to let you know how much your lives have touched my own stupid little life! You are actually one of my "heroes>"
Cristina Winkler, San Diego CA, May 8 2008
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These conversations happened a few months ago -
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Kim: "Is Nat a good guy or a bad guy?"
Ethan: "Nat is a good guy."
Kim: "Why?"
Ethan: "Because he takes care of Jonah."
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Kim: "We are going to take Jonah to Disneyland, ok?"
Ethan: "When he gets better."
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Kim and Ethan were toasting
Ehtan: "For saving Jonah"
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You see, Ethan has the wisdom beyond his age and he always thinks of Jonah. Ethan is a good big brother that everyone wishes to have. Jonah, please get well soon, you and your Gor-Gor Ethan are going to have many good times together.
Kim Fong. May 8, 2008
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Not sure who this email will get through to, but I would just like to thank you for such an honest and wonderful testimony of your walk with God over the past few months with Jonah. I’d be grateful if you could forward it to Jeannie and Nat.
Last night at work (I work on a neonatal unit in England) we had a newborn baby admitted with a possible liver problem. We had a very speedy diagnosis of HLH thanks to the dedication of our haematologist who came in from home near midnight, did a bone marrow test and reviewed the slides himself to reach this diagnosis. As I’d never come across this in my almost 30 years in neonates I looked to the internet for some information and stumbled across your website.
How awesome to see how God has worked in your lives and how many people you have met through this experience and lives you have touched… as I read, I prayed, and the awesome God that we have is omnipotent and omnipresent so I feel I have in some small way now shared in your life journey. May God continue to bless you all and above all may His glory shine through.
In His mighty grip, Gwen. May 6, 2008, England UK
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Jeannie, Nat, Ethan, and Jonah,
I just learned of the news about Jonah and just want you to know that
our family is praying for your family and thinking of you all daily.
Love,
Wanda, Dani, Hana, and Jack Ruran, May 4, 2008 |
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We're glad that Jonah is doing better each day. May God supply His strength to you and your family during this season in your lives. We hope that Faith and Erin can meet Jonah someday.
Susan Yu (Elyse's mom), April 24, 2008
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Elyse also had HLH, she lost her battle 18 days after BMT. Please visit http://www.elyseyu.blogspot.com/ for Elyse's story. May God bless the Yu family. Best Wishes from Team Save Jonah
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Hi Nat and Jeannie,
Sorry for not writing earlier, but Emily and I have been following the developments on the website regularly.
It is both tough and amazing to see how you guys are getting through and the strength and support you've gained.
You certainly have both of ours.
We only wish the best for Jonah and wish him a speedy recovery!
Sincerely, Alan & Emily, April 21, 2008 |
Dear Jonah, Jeannie and Nat,
Thank you so much for the happy news of Jonah's good health. Your story is such an inspiration. Asians for Miracle Medical Marrow Matches is sending me a kit so that I can register to be a donor. I hope that I will be able to help Jonah or if not a match someone else who is in need. I will always pray for your family and Jonah's complete recovery. Please let me know if there is anything I can do to help.
Gary Koide, April 15, 2008 |
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I am so thrilled Jonah is doing so well. His engraftment sounds awesome, especially staying in the 80's and 90's! So glad you are home with your Ethan and the family can get back to semi-normal. Thank you for your ideas with the formula, it is working good and Ethan (Blankenship) has gained 3 pounds since he was Lasixed out.
Ethan (Blankenship) had to do the gcsf for 3 different weeks then his anc went down to 600. I was scared to not do gcsf but so glad we didn't, it climbed on it's own. I noticed this is around the same timing Jonah did the dip in wbc. Our dr.s say this is normal. I feel it is the Septra affecting it, since it did our daughter's.
Love, hugs, and prayers!!!!!
Lee Ann Blankenship, April 11 2008
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Ethan Blankenship also has HLH and BMT, please pray for Ethan.. Best Wishes from Team Save Jonah.
http://www.caringbridge.org/visit/ethanlee
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Thanks to my friend Adriana Cuellar who sent me your link I have been praying for Jonah and your family. You all are very special people and I know that Jesus is looking over you and will touch you in a special way. I wanted to send you a poem that I wrote a few years ago that God gave me in my time of crisis and need and I hope it will help you.
God bless, Rev Gary Elliott, April 5, 2008
THE MASTER OF THE STORM
Though the wind surrounds me
And blows in my face
I cast my eyes toward Jesus
His glory and grace.
The seas are mounting
They come crashing about,
But because of Jesus I do
Not fear or doubt.
Only when I lose my focus
On my Savior, on Him,
Do my feelings of drowning
And helplessness sink in.
The Master of the Storm
The clouds and the seas
To worship my Lord Jesus
Is what I do please.
To trust in Him, the Lord
When He calls
Is the least I can do
For He gave me His all.
Matt 14:25-33
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Hi,
I'm praying for your little Jonah and your whole family. I too had a very sick child name Jonah who is now 2 when he was born. I prayed day and night and fasted every three days until the blessing of the lord where bestowed upon him. My eldest son who is amazingly named Ethan age 5 everyday would draw a picture of what he believed looked like the illness that was affecting Jonah and placed it in the Bilble and tell the lord to take it away. Believe me God does answer PRAYS.
So stay encouraged.
Love your sister in Christ, Patricia. March 23, 2008
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Just read your most recent update and wanted you to know our thoughts and prayers are continually with Jonah and your family! We pray the CMV is gone very soon and his engraftment stays high and stable!
By the way, Dayne LOVES the police truck you gave him! He plays with it all the time.
Hugs and Prayers,
Sam, Tonya, Dayne (HLH/ BMT buddy) and family. March 10, 2008 |
| I read your recent posting, with its mixture of accomplishments, as well as hopes and fears. Your prayers have been laid at Jesus's feet for his loving intercession.
Ron McGurk, Laval, Quebec, Canada. March 10, 2008
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Dear Jeannie and Nat
Just wanted to drop an email and let you know that I'm praying for Jonah and the Chuang family! I am so happy to hear that Jonah is gaining his health back one step at a time. We will continue to pray for you and your family I knwo its hard but dont loose faith god is strogn and he will not give up specially knowign JONAH is strong and has that faith to LIVE, i have a 7mth old just like JONAH and everytime i check in to see JONAH progress is it just breaks my heart knowing i could be on the same situation! MY PRAYERS WILL KEEP ON FOR YOU AND YOUR FAMILY! AM happy to know he is doing alot better:) Sincerly, Alicia & Family Inglewood, Ca. March 10,2008
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| Jonah, I saw your smiling picture today and it made my day! :) :)
Hang in there more prayers are coming your way.
Karen. March 10, 2008
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Please know that many people are praying for Jonah's health.
KB. February 26, 2008
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Praying with lots of faith for Jonah's health and for all his loving family and friends.
KB. February 20, 2008
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As I researched HLH online I can across your site. Little Jonah and Ethan are so beautiful. What an amazing family you have. I pray for Jonah's recovery everyday. It is quite extraordinary that Ethan can give life to his little brother! I became so sympathetic to your cause that I have signed up to become a bone marrow and stem cell donor. Hopefully I can help another family during a very crucial time in their lives. I wish Jonah's engraftment will stabilize, have a very successful recovery and a long, happy life.
Sincerely, Rosa Chu, New York, February 19, 2008 |
Hi, Team Jonah! Just wanted to drop an email and let you know that I'm praying for Jonah and the Chuang family!
Jinhee Choung (I'm a UCSD grad student), February 15, 2008 |
To Nat & Family:
Sorry to hear about this latest development, you must be worried to tears about it. Please rest assured we are all continuing to pray for Jonah, to stabilize his count and send it to 100%.
Ron McGurk, Laval, Quebec, Canada, February 15, 2008
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Dear Nathan,
When you left yesterday from Dr. Haag's office I didn't know the history. Today I went on your website and then to San Diego Blood Bank. For many years my name has been on the donor program but my information hadn't been updated. It is now and it would be such a privilege to be called upon. My prayers will be said for Jonah, Nathan and all your family.
Gay Cullinan (Dr. Russell Haag office), January 23, 2008
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Dear Jeannie,
I am so happy to hear that Jonah is gaining his health back one step at a time. We will continue to pray for you and your family.
Happy Holidays, Ileana. December 26, 2007
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Dear Jeannie and Nat,
Your latest update is truly a Christmas gift. We are encouraged to learn that Jonah is winning the battle, despite small setback. We realize that everyday for you must feel like another battle but we hope you realize that Jonah has already proven himself to be quite a fighter. And with your unwaivering support, we are confident he will continue to win this long battle. You are in our thoughts.
Jack, Julie, & Lily. December 26, 2007 |
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Dear Chuang Family,
I've been checking on Jonah's progress everyday, and I am so happy to see Jonah's successful transplant.....how about Jonah's big brother Ethan, what a Hero!!!
As you decorate the tree this year with friends and family, remember that the greatest gifts of all won't be found under it, they're the ones around it.
May all of the sights, sounds, and smells of this holiday season give you that gentle, happy feeling only Christmas can bring.
May your holiday season be filled with joy, Merry Christmas and Happy New Year!
Sincerely, Calvin Lee, December 22, 2007
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I was wondering how both boys are doing? I hope they are both well and I have been checking in each day to watch for an update. I hate that your family is going through so much. God bless you all! You are in our thoughts and prayers!
Lee Ann (Ethan Blankenship's mom), Dec 7, 2007
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Ethan Blankenship also has HLH and BMT, please pray for Ethan.. Best Wishes from Team Save Jonah.
http://www.caringbridge.org/visit/ethanlee
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Many people are praying for the recovery and health of your beautiful boys. Please let us know how Jonah and Ethan are doing.
With prayer, Dayna Gomez, December 4, 2007
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Dearest Nat,
I am deeply saddened by the heartache and worries that you and Jeannie are going through. The boys are so precious and God will watch over them and help them through this trial period. I pray for their speedy recovery and you both will soon hold them in your arms and watch them grow happily. Please stay strong and stay healthy yourself.
With lots of love,
Your long lost Yuk-Mui EE, San Gabriel CA, December 3, 2007
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Dear Jeannie, Nat, Ethan and Jonah,
I am so very sad to hear of this recent development. Going from hope only to find an even greater desperation is a heartbreaking, terrible challenge.
I can only hope that knowing there are so many who care, not only in your own families but also the hundreds and thousands who hold you all in their prayers, is of comfort to you. I am calling on God and my angel's healing hands, to hold you all to their hearts, and cause a tide of healing to wash over your two little ones. May they both recover full health after this ordeal, and develop a lifetime bond of love for each other for what they have gone through. May they fill your lives with a happiness that, in time, will cause these sad and difficult times to recede and be replaced with a deep familial love.
Ron McGurk, Laval, Quebec, Canada, November 29, 2007
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Dear Jeannie and Nat,
I've been following your sons' progress on your website. I'm so sorry that you and your family have to endure this heartache, but I am very hopeful that everything will work out and that you'll have two healthy boys running around the house in no time. I understand somewhat what you are going through. My husband had a successful bone marrow transplant three years ago and he is doing very well now. That is our wish and hope for Ethan and Johan. Your family is always on my mind and in my heart.
You have a lot of us strangers--some like us who are linked by a common thread--praying for you, sending you positive vibes, and hoping for the best.
Stay strong.
Jennifer. Novemenber 29, 2007 |
Dear Nat, Jeannie, Song and Ann
We are so sorry to hear about Ethan's situation. This is such a difficult time. Our thoughts are with you always.
We'll pray for both Ethan and Jonah's recovery. Please stay strong.
Paul and Anchi Kao, Northridge CA. November 26, 2007 |
dear friends,
here is my prayer...dear heavenly Father, you are sovereign, almighty, all powerful, and all knowing. we praise you for your mercy, grace, love, and justice. i do not understand your ways or your wisdom, but i know that your ways and wisdom is infinitely higher than ours. your promises are true and faithful. you call us to bring our prayers and petitions to your throne of grace, and you tell us to not be anxious for anything. i pray that the peace that transcends understanding would cover and protect jeannie and nat's hearts. i pray that the bone marrow transplant would be successful, and that jonah would be healed by your hand that heals all diseases from psalm 103:3. i pray that ethan would make a full neurologic and physical recovery from this accidental spinal cord injury. i pray for the doctors and nurses for wisdom and skillfulness that take care of jonah and ethan in the best possible way. i pray that this trial would turn into a testimony of your love and faithfulness. we lift this up to You, Lord, in heaven. may we constantly have the proper perspective that prayer gives us, that we are humbled and are nothing without You. in Jesus' name we pray. amen.
Kuangkai Tai, November 26 2007
Proverbs 17:22 A cheerful heart is good medicine
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| Dear Jeannie and Nat,
Stay strong, we pray Jonah and Ethan will both recover. Just want you to know that you all are in our thoughts everyday.
Sandy, Yeh, Becky and Kaitlyn, San Marino,CA. November 25, 2007
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Dear Jonah,
I know you are a good fighter and you will make it through. Your uncles and aunties in LA (Michael, Stefanie, Justin, Shana and Ryan) are all waiting to take you to Dave and Buster's, Disneyland, movies and our other favorite handout places. We all love you so very much.
XOXOXO, your Great-Auntie Kim (GAK), November 23, 2007
P.S. - of course we will take Ethan too
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Dear Nat and Jeannie,
May lord supplies your needs spiritually, physically and emotionally.
We pray for Jonah and Ethan's successful transplant procedure with no complications. Lord is with you.
Paul and Anchi Kao in Northridge, CA. November 21, 2007
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Dear Nat and Jeannie,
Just want to let you know that you have everybody in LA, SD, California and everywhere; behind you and support you. We are praying for Jonah's successful BMT and recovery, and he will be a healthy boy and he will enjoy a normal life.
Please give my little hero Ethan a super big Lightening hug.
Love, your AK. Alhambra CA, November 18, 2007
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Dear Jonah and family,
My name is Ivy and i am from melbourne, Australia. I am vietnamese and I have hlh. I've been battling this disease since august 2005.I remember before that I had a cold that seemed like it lasted forever. There were times when my temperature got up to 40 degrees. I was in remission about 7 times and got better seven times.That was when my doctor decided that I needed a Bone Marrow Transplant.I had my bone marrow transplant on the 16th of july 2007. I was in there for 5 weeks.The doctor said I was above average and very fit. Now i am on cyclosporin and resprim and am nearly going to go back to school in december. My hair is starting to grow back! lolz! well, i gotta go, just want you to know that my prayers and thought s are with you.
Ivy, Melbourne, Australia. November 17, 2007
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God picks the " strongest " to deal with crisis, so no matter what happens " stay strong and stay together ".
Jonah will always be in my & my family/friends' prayers.
Take care. Calvin. California, Novemeber 7, 2007
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Dear Jeannie and Nat,
We heard from Tina Hong about what your family is going through with Jonah. We had a son as well in August, so we are especially heartbroken that little Jonah has had to suffer so much. Our thoughts and prayers are with you all and we hope that everything in Cincinatti with the transplant goes well.
Marian, Andrew, Christie and Andy. November 1, 2007 |
Dear Jeannie,
We got the news about Jonah just now, from Annette Liu. We found out about him and about his condition at the same time; talk about a roller coaster of emotions... Although we drifted apart over the years with this crazy life of ours, you're as much in our hearts as ever. Know that we're here for you, now and always.
Sandy and the gang (Voislav, Alexander, Julian and Marcus) October 29, 2007 |
Dear Jeannie & Nat,
I am so sorry to hear about Jonah, I just heard about him from Marian Lee. We are praying for Jonah too and I am going to spread the word for everyone to register for the bone marrow drives, I have ordered my kit for testing today. Best wishes for him and your family.
All our love, Annette & Kevin. October 28, 2007 |
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- Hope is what happens as long as we breathe. For although it takes time, the sorrow will leave.
- Hope is what happens long after the pain, Hope is what happens - again and again. by Catherine DeVrye
- Light always follows darkness. by Anonymous
Sue and Pat, Pasadena CA, October 23, 2007
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I'm very sorry to hear that, along with your dilemna will Jonah, you guys also have to face the threats of the recent wildfires.I wish you the best in times of stress and hardship.
Sincerely, Joseph Liang... October 23, 2007 |
Dear Nat, Jeannie, Ethan & Jonah,
What a fabulous vehicle of love and support this is. It’s so wonderful to be able to read all of the letters of support and encouragement. It’s obvious that the phenomenal impact you have had on friends, family, and even strangers who are “storming the Heavens” with prayers for you and your family.
I just want to let you know that you have been in my daily thoughts and quiet time for months now. I’ve never prayed before, but now I’ll join the force and be one of your prayer warriors! I’ll continue to lift you up in prayers that God will strengthen, keep and protect you; that your family will find the guidance and peace that they need; and those in the medical field will acknowledge the power of God and be an instrument to be used by him.
All our love, Evelyn (Nat’s cousin) & Family – Redondo Beach CA, October 20, 2007 |
Dear Little Jonah,
My prayers are with you! I pray that Jehovah God wraps his loving arms around you, little one...and your family! I pray that you receive a donor as soon as possible (or earlier). I pray that you lead a wonderful, healthy life. I pray that your family already knows that IT'S ALREADY ALRIGHT!
In Jesus' name...AMEN! Sharina, San Diego CA, October 18, 2007 |
Dear Chuang family:
Please keep the faith. A miracle will happen.
With much thoughts and prayers for Jonah and your family,
A Friend in Christ. October 17, 2007 |
Please know that Jonah is in our prayers.
When I was a baby, I had bone cancer and an underdeveloped digestive track. I could not keep anything down and was becoming malnurished. My grandfather was a Naval Commander who served all over the world. He noticed that in Korea, the ladies made a rice grool to feed to their babies. He made this and began to feed me the water from the rice. It stayed down enough to get me healing. I share this with you hoping it may help you too.
Sincerely, Lisa Salazar. California, October 17, 2007 |
Dear Nat, Jeannie, Ethan and Jonah:
" Stay strong! " Don't ever give up or lose hope in your faith, because God will never give up on you.
Paul and Anchi Kao from Northridge, CA. October 17, 2007 |
Dear Jonah, Nat, Jeannie, and Ethan, I was very sad to hear of Jonah's illness. My thoughts and prayers are with you all.
Take care. Stephanie Holowka Toronto, Ontario. October 10, 2007 |
| Dear Jonah's family : know that our fellowship is praying for you along with other intervarsity fellowship. Amy (Texas) October 5, 2007 |
Hola, soy Gisela Bendeck, y quiero que sepas que desde YA, están en mis oraciones diarias.Confío en que Dios les va a ayudar con todas las pruebas que les está poniendo.
Deben tener MUCHA FE y ÁNIMO!!! eso influye mucho en todo lo que pase cada día y si Jonah vino al mundo, es para algo maravilloso... lo mismo que Ethan.Soy amiga de Karen Becerra, y esto me afecta mucho, pero desde ya mismo oraré por todos.
Un fuerte abrazo, Gisela Bendeck. October 2, 2007 |
Dear Chuang family,
We don't know each other but your family has been in my thoughts and prayers daily for the past month. I am sorry Jonah is not healthy and has to go through this ordeal. I have faith God will take care of Jonah and a miracle will be blessed upon your family. My husband and I registered today and we hope we can help Jonah. May God continue to bless you and give you strength and courage and FAITH.
Love, Amy S. Redondo Beach CA, September 29, 2007 |
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Dear Chuang family, My thoughts and prayers are with all of you and Baby Jonah. I learned about Jonah from my daughter, Tamara who works at SCMRI.
I pray that there is a miracle waiting just around the corner for little Jonah. May GOD bless and keep all of you safe. Sharon Halle 9-28-07
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| Dear Dr.Chuang,Jeannie,Ethan and extended family: I just want you to know that my thoughts and prayers are with "all" of you at this waiting period, because at a time like this; it effects the whole family. And Jonah, all though you are so young and small; keep fighting for the chance to be the little brother to Ethan. And, the rest of yhe family are waiting to spoil you with lots of special hug's-n-kisses. Tamara (from:SCMRI) 9-28-07 |
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Hello: So sorry you are having to go through this. We will add Jonah to our daily prayers and add that his brother will be his match and donor. You have beautiful children. Hang in there I know it's hard and I know how you feel. We are exactly one month ahead of you in treatment, I think. If you have any questions you can e-mail me. Lee Ann. September 27, 2007
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Dear Jonah, I came to know you through my sister, Dominga(Minda) who is there with you during your difficult time.When i saw your picture,I was really touched coz on the day u were born, my sister was so proud of you.She told me that you are so cute and very healthy.That's why,i was very sad when my sister told me that u were in the hospital and got sick.You're such an angel...i know u can make it.My name is zeny, from toronto, canada.I am a cancer patient,too.I've done my chemotheraphy and i know how it feels like after your chemo...Be strong and keep fighting,Jonah!!!My sister and I are both praying for your speed recovery..May God bless u and your family.
Love and prayers, Zeny Mones, Toronto,Canada, September 25, 2007
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Dear Nat, Jeannie and Ethan:
I can't begin to tell you how sad I was on hearing of Jonah's difficulties. You are a wonderfully delighted and loving family and I just know that God will give you the strength and courage to get through this most difficult period of your lives. I have been praying non-stop for Jonah's return to good health and I feel strongly that the day for this will soon come. Both Jonah and Ethan are two beautiful boys and I know how much you cherished them. I wish there was something I could do to help you in your fight against this terrible disease. It is said that things happen for a reason and we should learn from it. The lesson to learn here is without doubt that we should love and care for one another regardless of what walk of life we come from. Please stay strong for you precious boys, especially little Jonah and know that you are loved and your friends are walking the walk with you in their own way. I will continue to pray that God grants your family peace and returns Jonah to good health. You and your boys future will be bright again, just have faith and continue to love each other to the fullest. My prayers for Jonah will continue for as long as needed.
Sincerely, Gail Lopes, Toronto Canada, September 24, 2007
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My husband Justin and I have been involved in bone marrow drives in San Diego for several years now, since our own family relative was affected by leukemia. We have Jonah and your family in our thoughts and prayers, and we wish you all strength and perseverance.
Love, Casey and Justin Ruthenbeck, San Diego CA, September 24 2007 |
"I am the pilot and Jonah sits next to me, mommy and daddy sit in the back" - Ethan Chuang
Ethan seems to empathize really intimiately with Jonah's situation, already acting like the great big brother I know he'll grow up to be.For situations like this, I think everyone has a small part of them that wants exactly what he says, to be the person to "fly" away from all the worry and pain, to land everyone safely.
Perhaps I can't be the pilot, but Jonah and rest of you guys have my sincerest wishes and regards.I can hardly begin to emphatize with what you guys are going through right now, but I'm hoping for the best.
Love,Joseph Liang, Jonah's "uncle" (Jeannie's cousin), September 22, 2007
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Hey Jonah since that night my Dad told me you had blood cancer I have been thinking everyday about you. Since I recently entered high school I've started to run cross country and having to focus on one thing has brought me up to become as fast as I could be. Since I'm writing this on a Friday and tomorrow is a big race for me I'll run the race for Jonah and all the races onward. I promise that if I could run and run till the cure comes out I would run for the rest of my life. With my cross country team very tight I have been going to the church that Nat told me about and whats funny is that my team also goes to the same church. Always thinking and praying and loving you.
your mom's cousin Jonathan Liang, September 21, 2007
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| I just like to let your family know my prayers are with you. I don't know what to say to someone at a time like this, but What can say and know for a fact that God is always with you and your beautiful son. Just please keep faith and Lord in your heart and everything will work out. God bless you! Jasmine Harrison, September 21, 2007 |
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Jeannie: I was stunned to see you and your beautiful son on the news tonight. I wish there was something Tyler and I could do to help you. Just know that we will keep you and Jonah in our prayers. You have been such a wonderful and caring doctor to Tyler. I wanted you to know how much that means to me. Praying for a miracle for Jonah.
Tamie & Tyler. September 21, 2007
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"I am the pilot and Jonah sits next to me, mommy and daddy sit in the back"
Ethan told Grandma Cathy. Diamond Bar CA. September 19, 2007 |
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Dear Chuang Family,
I learned about Jonah through Nikita of A3M....and it breaks my heart to see Jonah in chemotherapy..... God will help you all to overcome this crisis.....I got to known Nikita/A3M because my younger sister Joann Lee at 33 years of age just passed away of Acute Leukemia on 6/1/2007 in City of Hope Medical Center in Duarte, CA……Because of Invasive Fungal Infection, my sister Joann Lee did not even get the chance to do the search for a bone marrow donor(I tested mine 1st but our HLA did not match)......so it is crucial to keep Jonah's surroundings/environment as clean as possible.....WBC are very low during chemos and there are fungus everywhere in the air....so just be careful..... Like what your family is going through right now, it was also a big shock for me and my mom(it's only 3 of us in the family).....I will check Jonah's progress on your website....God bless you all!!! and I know Jonah will get through this o.k. and he will grow up to be a great man!!! Thanks and take good care of yourself too.
Sincerely, Calvin Lee, Hacienda Heights CA. September 19, 2007
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Dear Jonah,
Last weekend I picked up a sandwich at a coffee shop in San Gabriel for lunch. When I rushed out of the store, your cute little face on the flyer caught my attention and I grabbed a copy my way out. It's heart-wrenching to know that you are sick and you have to go through chemo when you were just 4 weeks old. It must be really tough for your little body to take! My husband used to intern at A3M and we had already registered with the blood bank to be donors years ago. We are sorry that we cannot help in that regard. However we will be praying for you. May the Heavenly Father heal and watch over you. May the Lord give your daddy, mommy and little big brother extra ounces of grace and mercy to go through each and every day. You are loved even though we haven't met!
In Christ, Brenda, San Gabriel CA, September 18, 2007 |
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A friend of mine, Stephanie Chun, sent me the link to your site. I am of Asian descent have already registered in the National Marrow Donor Program. I do hope and pray that you find a match for Jonah. Give, live, love... Eugene Lee. September 18, 2007
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| "Jonah is in hospital, Jonah is sick, I am very sad. I miss my mommy, daddy and Jonah." Big Brother Ethan told Auntie Shana. Pasadena CA. September 15, 2007 |
| Dear Jeannie, Nat & baby Jonah, I work with your (Jeannie's) sister Susan and have been praying with my husband for your family each day---for peace in your hearts, for cure, for daily strength for all of you. What a beautiful family you are. Thanks for reaching out through this website. We will keep in touch as things progress by watching the site. Linda Dickey Irvine CA. September 14, 2007 |
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Dear Jeannie,
In difficult times, my nanay (that's how we called mom in Tagalog) always reminds me of three things: 1) Difficulties do have a reason but they dont last forever. 2) Miracles do happen in God's time so trust in the Lord because he knows what is best. 3) God will never forsake the prayer of a mother. Take care. In prayer, Susan F. September 14, 2007
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Dear Dr. Jeannie Huang,My thoughts and prayers are with you and your family during this difficult time. Jonah's story touches my heart and motivates me register to be a bone marrow donor...so Jonah, keep fighting and be a strong baby that you are... hopefuly we'll find you a match soon....With warmest regards Van Ong September 13, 2007
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| Dear Jeannie, You and your family are in our thoughts and we are praying for a good outcome. Please let me know if there is anything I can do to support you. Meredith Fidler, San Diego CA, September 13, 2007 |
Dear little Jonah, As I saw your picture, my heart is touched. You are precious to the Lord. He has created you and brought you to this loving family. He will never foresake you. Nothing, absolutely nothing will separate you from the love of Christ! May you find strength and love through all the prayers that surround you!
Lord Jesus, may you embrace little Jonah with your love that he feels so secure and safe in your arms. May your healing hand, Lord, be touching him and bring him recovery beyond our comprehension. May you pour double portion of grace and strength to every family member of Jonah that they may experience your love deeply through the process! In Jesus' name we pray. Amen. Auntie Grace, Los Altos CA, September 13, 2007
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I heard about your situation through a couple I met last night at a support group for infant loss...I had a baby who passed away at 3 weeks old and so I know what you may be going through. My son Jack was not lucky enough to survive, but I am hoping that Jonah will. I became a bone marrow donor right after Jack died, not because he would have needed a transplant, but after seeing my baby suffer, I wanted to do whatever I could to help anyone that may be sick. Also, I am Asian so I know that the percentage of Asian donors are small...anyways, I registered in LA, which is where I lived at the time, but because of your website, I just called the donor registry to update my SF address. I had completely forgotten to do that...so I am glad I was told about your site and I hope that if Jonah needs a match, that I could be the one who can give it to him.
Love, Sevia Hui, San Francisco CA, September 13, 2007 |
Jeannie & Nat: Our thoughts and prayers are with Baby Jonah. We recently had a 25-week premie, Amanda. She was discharged from the NICU on 8/2/07, the same day Jonah was born. Through this experience, we firmly believe that babies are fighters. Jonah will go through this challenge safely and grow up to be a healthy, strong boy. Jonah is here to receive all the love and hugs from everyone for years to come. We will continue to pray… Love, Jonathan, Lei & Amanda. September 12, 2007
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Today is my 12th birthday. While I was blowing out the candles, I wished for Jonah to get well. I love Jonah very much and hope he recovers soon .
Auntie Shana (Nat's cousin), San Marino CA. September 11, 2007 |
Jonah's disorder indeed touches our hearts and souls collectively. He also brings out the best in each and everyone of us in his family, family friends and their friends and friends. Their kindness, generosity, empathy and compassion do become contagious; they spread out across the country, cross ethnic groups and religions. It is humanity radiating at its best. Good luck, hang in there, Jonah - we all love you.
Great-Auntie Stella, San Marino CA, September 11, 2007 |
| Dear Jeannie and Nat: Our church family and friends are all praying for a miracle for baby Jonah. Know you are surrounded with love and prayers of many. Our Lord is listening and nothing is impossible with Him. Bowmond and RoseMarie Lee, Monterey Park CA, September 11, 2007 |
Jeannie & Nat, we lift up our prayers to the Lord and may He grant you strength and peace at this difficult time. Baby Jonah is here to unite us in powerful prayers and we trust Jonah is in good hands of the Lord. Shirley & Vincent, Portland OR, September 11, 2007
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| Our prayers & thoughts are with you!! There is a reason God planned out the pathway for all what are going to happen or happened. We will be going to St. Bridget Catholic Church on Sept 30. 2007. Joe & Elaine Choi, Buena Park CA September 11, 2007 |
There is a reason for Jonah to be born. He touches all our hearts and souls. He brings the best in all of us in a unified effort to look for a bone marrow match. God will guide us through this most painful ordeal. A miracle shouldn't be too far away. Thank you all. Keep up with your prayers.
Grandma Cathy. Hong Kong / Pasadena CA. September 11, 2007
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Hi!, I really hope that you have found a donor by this time. You don´t know me but an invitation to save little Jonah came to me through Karen. I just want to say to you that I'm here, in Colombia, wishing the best for your family and Jonah. I know this must be a very hard situation, but keep in mind the good moments and the good things that have been happening. So many people giving you "web hugs", so many people helping you and caring about you. Please give Ethan a sweet hug. Liliana, Colombia, September 11, 2007
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| Dear Dr Jeannie Huang, You are in my family prayers. I have 3 boys my self. We wish your boys all the best. We will do our best to spread the word among the people we know specially Asian descent. We are always here if you need any help. Khawla Suleiman, San Diego CA. September 10, 2007 |
| Dear Jeannie and Nat, We are your parents' good friends. Our thoughts and prayers are with baby Jonah and your family always. Paul and Anchi Kao. Los Angeles CA, September 10, 2007. |
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Dear Jeannie, We want you to know that all the staff at the Regional Perinatal System of UCSD Medical Center are praying for your family during this very difficult time. We are doing everything we can to get your message out and promote your upcoming drives. Our thoughts are with you and baby Jonah. Sincere regards, Amy Chatten, San Diego CA. September 10, 2007
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Good morning Jeannie. We are all praying for Jonah and your family. My husband and I traveled to San Juan Capistrano Mission yesterday to light a vigil-candle for little Jonah and ask St. Peregrine, the patron saint of those afflicted with cancer, to help Jonah recover. St. Peregrine helped me during my own personal trial and I have faith that he will help Jonah as well.
~ Amethyst Cureg and Family, San Diego CA, September 10, 2007
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Dear Jeannie & Nat: You have been in my thoughts and prayers since I first heard that Jonah was ill and in the hospital. I have been asking everyone I know to pray for him, and I know that with all of the prayers, God can't help but listen!!! I wish you all the best. Susan, San Diego CA, September 10, 2007
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Dear Jeannie and Family,
Please know that we are praying for Jonah and that a mass for his prompt recovery will be held Sunday, September 22 in Coronado . Surely the prayers of all the parishioners, friends and family will be answered. I will forward the details in a few days. Let me know if there is anything we can do to assist you during this trying time, we would love to help in anyway possible (baby sitting Ethan, cooking, etc.). Ileana Rubio, San Diego, CA September 10, 2007
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Dear Dr....Our prayers are with you and with your family.
FABIO BECERRA and family. Bogota-Colombia September 9, 2007
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Dear Jeannie, Please remember you have lots of friends, colleagues and coworkers who are with you during this time, helping and praying for you and all your family.
Karen. September 9, 2007
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Jeannie, My thoughts and prayers are with you and your family. Hang in there. Snehal. September 9, 2007
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Hello Chuang Family,
I came across your website through a common forum that your friend Erin uses with me. Both Ethan and Jonah are beautiful boys. I am here in Canada, and wish I could do something here to help with your son's search of matching bone marrow. I myself of two young children ages 3 and just turned one years of age.
I can pray that God would strengthen and guide your family during this difficult time. Please keep me up to date when you can.
In His name, Wong family. Canada. September 9, 2007
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Dearest Jonah,
My thoughts and heart are with you during this time. I can't wait
till I come back during Thanksgiving to see you.
Uncle Michael (Nat's cousin), Baltimore MD September 8, 2007 |
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Our Thoughts and Prayers are with you.
The Kim Family, San Diego CA. September 8, 2007
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Jonah, your GAK is looking forward to take you to DL for your first Dumbo ride.
Love and Kisses, Great-Auntie Kim , Alhambra CA. September 8, 2007
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We're not trying to help Jonah only by doing the simple mouth swab test. We think that this is an opportune time for us North American Asians to pitch in and expand our relatively small Asian charitable network so that more people of our own race will be able to benefit from this concerted effort much more readily in the future. Our hearts go out to little Jonah and his family at this critical moment. We wish Jonah a successful BMT when the time comes. Sue & Pat, Pasadena CA . September 7, 2007
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